So, there it is. My wife and I shared a lot of tears over this. As an old Retired State Trooper, and thinking that I can deal with and defeat any physical problem that could attack me, I found out there are many physical problems that happen, that are above and beyond the ability of an average person to deal with. It was an excellent read I too had a pe and suffer from asthma like symptoms and the cramp like pain you experienced. This may mean an exercise plan, gradual return to work, or medications to help specific symptoms. i know i am old(76) but someone please help me as my GP does not bother to help me and i don't know what to do. Whether or not pushing myself physically did any good I'll never know. I've also experienced chest sensations throughout my recovery that I can't find any information on. I could feel intense pressure and throbbing in my ears, kind of like a displaced headache. They think the eye pain might be optic nerve pressed from the massive clot and just gets irritated. If you take too little warfarin you are likely to develop blood clots. Doc did CT scan put me in the ambulance with heparin IV to next larger town to Hospital with a Heart/Pulmonary unit. Lying still required a lot of painkillers. A pulmonary embolism (PE) is the sudden blockage of a blood vessel in the lungs by an embolus. Is there a support group for people in recovery from PE. I've been put on Xarelto (no Coumadin for me, apparently), and am hoping my nasty upper back pain (which is what brought me to the doctors in the first place) and fatigue subside soon. I still have battles with breathing. No pain. No more problems again. I met with surgeon (he removed my gullbladder several years ago) and he will remove my lipomas and take a look around my abdominal area via liproscopic surgery. I was diagnosed 30 Oct with multiple clots in both lungs. I started off training about a month after my hospitalization. The entire experience was terrifying. i am very lonely and need help. Walk in patients tend to be more stable, have less heart involvement, and smaller clots. Lena Welch (author) from USA on April 22, 2014: PEs can be very difficult to diagnose. The nurse came for four days and by then my level was consistently 2.4. You also will get sick easier, stay sick longer, and find that you get more sick feeling when you are sick. The blood clot breaks off from someplace and blocks the lungs. and feel free to add our support group if you would like as well, we off plenty of help, with no sales oe asking for donations from people! I bounce from friends to family couches. I would love any feedback on chest sensations if anyone else has experienced them. Thinking that he had a slipped disc he booked in with an osteopath. Oxygen was low, blood pressure was up, heart rate was up and my skin was pale and cold. Some patients die before they even know that they have a PE. Like right now. Today I still have quite a bit of SOB and my oxygen SATs remain between 94 and 96%. Thank you. It's been six months now and Pete is back at work and doing ok. The only education they seem to have on the matter is what I've shared with them. I had a burning sort of sensation go up the back of my throat, up each side of my neck and then into my ears. I am 6 months removed from provoked bilateral PE's due to a ruptured achelles tendon and torn calf muscle. Talk to your doctor. Also noticed colds now bring on slight recurrence of symptoms. If the patient enters under extreme duress, it can be a very scary start to recovery. Had massive truncated PE late Dec. Was recovering from chest cold. I am 80 now, and just got released from the hospital with what I think the clots are under control. First had PE 6 years ago - was in hospital for a week but recovered without a problem. You learn to live with the physical symptoms and setbacks. I do not have pneumonia, mono, an autoimmune disease, or a thyroid issue. Just to warn everyone. These patients may have simple complaints of chest pain or shortness of breath. I've gone too far and my recovery from these setbacks ran from 4 days to 10. At first a 3/4 mile walks exhausted me. My breathing got better over the next couple of days, but deep inhales still hurt. This is very helpful. I suffered a PE 2 years ago(May 2013). Then, suddenly (12 hours later) I woke up in the ER being told that I had collapsed and suffered a "massive pulmonary embolism" and that I was very lucky to be alive. I am not trying to be a big wimp, I had no idea my life was going to go from healthy to flat line twice in a month. Now my doc says there is an antienflamatory that can be taken while on Warferan called Nabumentone. I was in a 2nd world country at the time and had no desire to check out their medical facilities. I had a double PE around a month ago - the problem is it probably came as a result (not conclusive) of a broken ankle at Christmas. They haven't killed me so I accepted them. Your doctor schedules routine follow-up visits, during which imaging testsmay be performed. Now we are just trying to piece together the puzzle. I hope that this PE will be my only clot, but, time will tell. I was 61 years old at the time and in very good health for an "old" person. I get tired quickly after doing light cleaning. I'm home again now but still alone and can't get out of my head long enough to "live with intention". When I entered the ER my doctor had called ahead of time. Submassive pulmonary embolism means that while criteria for massive pulmonary embolism is not met, and the patient may appear to be relatively stable; there is still evidence for right-sided heart dysfunction. Clot removal treatment can help in treating pulmonary embolism. Fifty-seven patients (45%) were diagnosed with deep vein thrombosis, 48 (38%) with pulmonary embolism, and 21 (17%) with both. Going back to my old Rheumy! It is a test of the probability of a PE. Always speak to your doctor before acting and in cases of emergency seek I’m looking forward to this. Im on the warfin blood thinners for a blood clot in lung from a surgery from a car accident in jan 2015. And mine hasn't been a bed of roses. I was recently diagnosed with DVT. Pain, shortness of breath forcing me to cough, fatigue. I am only 52. now I get out of breath just on the excecise bike after 3 mins. This means most of the time you don't see a specialist and the whole system is fairly slack! I am now having my blood checked every few days and am taking 5 mgs of warfarin every night. Then a few days ago, I get another request from the same hospital to go do a D-Dimer blood test in readiness for my Out-Patient's checkup, which will be in 4 - 8 weeks. My husband fell off a ladder last March, he was rushed into hospital and they discovered multiple clots in his lungs. Many people with pulmonary embolisms never get a diagnosis until they are being autopsied. A month out of bilateral PE. ... another dangerous complication that can cause fatigue and shortness of … Clot busters are a high risk treatment but can be a lifesaver for an unstable patient. A month ago I wore a heart monitor for two days at home, still no communication from the hospital. Will update everyone in a few weeks. My PEs occurred last week and I have been trying to figure out what caused the clots. Your old clots will be dissolved by enzymes in your body or they will be sealed off like a pearl. As the days pass you will begin to feel like you are living with vampires. Anticoagulation therapy may last anywhere from 3 months to 1 year post PE. Most people report that there are no restrictions once they are home. I was hospitalized 8 days and put on Lovenox as warfarin is not safe for pregnancy. So my question is, has anyone else experienced something similar and if so, how long does it last? I exercise nearly every day. Hope you are still well x, We are winding if you would be willing to sharine some of you great information with us, so we can addict to our site? He sent me to see a cardiologist, and after ECG and Ultrasound, he sent me for a VQ scan. I dealt with severe total body pain daily up until a few months ago, & that has gotten much better with a supplement called Juice Plus. I really didn't realise how serious this condition was, so Thankyou I definitely will be my own advocate & ask my GP to do tests on my legs/thighs. I felt fine until I tried to walk to a friend's house and found myself short of breath after a couple of minutes. Woke up feeling like i wasnt getting enough oxygen. Was in for a few days then released. I spent 6 days in the hospital getting my warfarin going and get my INR high enough to go home. i am not the best exercize person to begin with, but following my saddle pulmonary embolisms i realized changes must be made immediately. I do not have a fever. Before the broken hip I was a keen road cyclist thinking nothing of riding 100 miles. A doctor will need to see you soon after discharge and a few days a week until your warfarin dose pattern is established. This is one of the most helpful and straightforward pieces of information I have found. I was sent via ambulance to the ER after fainting and having seizures twice within 15 minutes. Immediate care will vary greatly. I've done ok lately but in the last few days have started having a heavy chest, can't focus, light headed and dizzy, depressed, disoriented etc etc Just not myself. I am currently taking Lovenox injections and taking Coumadin trying to get my INR up to 2.25. Good news is that so much is known about warfarin. Do I need an echo-cardiograph to see if my heart ejection factor etc has gotten worse? If any of them are severe, or you are not sure whether they resemble a clot or recovery, you should go to the emergency room and tell them that you had a recent PE. (I’ve been home 3 weeks). I am 9 months post Surgical DVT/ Multiple PEs in both lungs (70-80 total). Impressive work. This never worked, he got worse. It is looking like that was a good estimate for my body. I wonder if it will ever stop and i will get back to a normal life, i had both my lungs collapse and spent 3 months in ICU. I also have social anxiety and bipolar which with medication has thankfully levelled out a bit. For around 3 months breaks ( before my PE and suffer from factor 8 high levels cause! My Rheumy bc of her attitude and lack of knowledge about the drugs I 'm still having chest pain shortness., during which imaging testsmay be performed 'm alive to see my 2 kids and.! 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